Meg was just 19 when she was diagnosed with a brain tumour, just as she was about to begin a new life at university. Her symptoms include epilepsy, memory loss, hallucinations, visual disturbances, extreme fatigue, disorientation, nausea and headaches. After a year of searching for support, Meg’s family realised that there just isn’t much ‘out there’ in terms of coordinated support, even though brain tumours account for one death in every hundred. So the seed for brainstrust was sown. If we can help one family to avoid the struggle that Meg’s family has had then it will have been worth it.
And so brainstrust has one mission… to make things happen for people who, like Meg (the charity’s icon), have brain cancer. Whether that is through making life easier or supporting sufferers in their search for treatment – brainstrust aims to be proactive and support people when they need it. Not after the event when it is too late. We aim to:
- address the lack of coordinated support
- explore the availability of treatment
- raise awareness
- be proactive, not reactive
brainstrust is here for the long term. Our Holy Grail is to establish the brainstrust Centre of Excellence in the UK which just focuses on brain cancer. To achieve this, we are working collaboratively with the National Hospital of Neurology and Neurosurgery.
Help us to be a catalyst… your support goes a long way in helping brainstrust to be a catalyst for much needed change in the treatment of brain cancer sufferers.